RARE News

CureDuchenne Welcomes Patricia Brown as Senior Director of Community Engagement

By admin

23 January 2024

Rare insights

Rare Disease Summit, March 19-21 in Philadelphia, PA, United States

By admin

22 January 2024

RARE News

Project CASK Grant Program now accepting applications

By admin

18 January 2024

RARE News

International Kawasaki Disease Awareness Day: Special Podcast to Illuminate the Importance of Awareness

By admin

17 January 2024

RARE News

Benchmarking report published on “Early and Expanded Access Pathways in Ukraine, Poland, & the Baltic States”

By admin

10 January 2024

RARE News

UK charity PSPA raising awareness in news-style programme

By admin

10 January 2024

RARE News

IGA celebrates 30th anniversary in 2024

By admin

9 January 2024

RARE News

Sickle cell disease is not a joke

By admin

19 December 2023

RARE News

Sickle Cell Disease Association of America Inc. statement about gene therapy approval

By admin

15 December 2023

RARE News

PSPA celebrates after receiving £164,000 National Lottery funding to help people living with PSP & CBD

By admin

13 December 2023

RARE News

Worthing couple take part in cooking challenge supported by celebrity chefs to raise funds for Muscular Dystrophy

By admin

8 December 2023

RARE News

CureDuchenne raises more than $1.3 million at ninth annual Napa in Newport to help find a cure for Duchenne muscular dystrophy

By admin

16 November 2023

RARE News

Exciting news: $100,000 in funding for Myhre syndrome research projects

By admin

7 November 2023

RARE News

Rare Stories initiative illuminates lives in Northern Ireland rare disease community

By admin

2 November 2023

RARE News

Pilbara Rare Care Centre to open in remote Western Australia

By admin

31 October 2023

RARE News

CureDuchenne welcomes new executive director, vice president of medical affairs, and board members 

By admin

25 October 2023

RARE News

Arthur Suckow, former co-founder and chief executive officer of DTx Pharma, joins CMT Research Foundation board of directors

By admin

5 October 2023