RARE News

RARE News

CMTUK charity is one of the first UK charities to move from subscription-based membership to a discretionary donation-based charity

By admin

28 September 2023

RARE News

Sickle Cell Disease Association of America holds national convention

By admin

27 September 2023

RARE News

World Orphan Drug Congress Europe 2023

By admin

27 September 2023

RARE News

Cooking challenge to raise funds for muscular dystrophy charity gets the backing of celebrity chefs and celebrities from across the UK

By admin

26 September 2023

RARE News

Congratulations to the 2023 winners of the Global Genes Open Science Data Challenge

By admin

22 September 2023

RARE News

CureDuchenne launches the CureDuchenne Caregiver Course: a free virtual resource for Duchenne muscular dystrophy caregivers

By admin

21 September 2023

RARE News

EveryLife Foundation study measures economic impact of delayed diagnosis of rare diseases

By admin

18 September 2023

RARE News

Uncommon knowledge

By admin

13 September 2023

RARE News

W. David Arnold, MD joins CMT Research Foundation Advisory Board

By admin

7 September 2023

RARE News

Sickle Cell Disease Association recognises Sickle Cell Awareness Month

By admin

5 September 2023

RARE News

Dyne Therapeutics and CureDuchenne partner to give the gift of mobility to two local families

By admin

30 August 2023

RARE News

Million Dollar Bike Ride pilot grant program request for applications

By admin

24 August 2023

RARE News

NHL All-Star Ryan Getzlaf returns to the links for the 12th annual Getzlaf Golf Shootout on September 9 benefiting CureDuchenne

By admin

16 August 2023

RARE News

IGA issues position statement on non-comparable medicines

By admin

15 August 2023

RARE News

Double dose of suffering: how the war in Ukraine has affected patients with rare diseases

By admin

14 August 2023

RARE News

Landmarks illuminate pink and purple for National Eosinophilic Week

By admin

4 August 2023

RARE News

Pulitzer Prize-winning journalist Amy Dockser Marcus and Rebel Health author Susannah Fox to deliver keynotes at 12th annual RARE Advocacy Summit

By admin

19 July 2023

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