RARE News

RARE News

Blueprint Medicines reports clinical data highlighting leadership in developing targeted treatment options for patients with systemic mastocytosis

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22 December 2022

RARE News

CureDuchenne raises more than $1.5 million at eighth annual Napa in Newport to help find a cure for Duchenne muscular dystrophy

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8 December 2022

RARE News

NFL players spotlight Sickle Cell Disease Association of America

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7 December 2022

RARE News

DEBRA launches £5m fundraising appeal to stop the pain of EB

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16 November 2022

RARE News

Winners of Gene People Awards 2022 announced

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16 November 2022

RARE News

Leading Muscular Dystrophy charity gives petrol heads a ‘driving experience of a lifetime’ as it continues its commitment to delivering life-changing wish-fulfilment experiences to children and young adults

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26 October 2022

RARE News

CureDuchenne launches Occupational therapist certification programme to improve care for individuals with Duchenne muscular dystrophy

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20 October 2022

RARE News

The Student Voice Prize: an international essay competition raising the profile of rare disease

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13 October 2022

RARE News

World Orphan Drug Congress 2022 – Europe’s most exciting orphan drug event

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10 October 2022

RARE News

World Duchenne Organization announces Accredited Duchenne Centers Programme

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7 October 2022

RARE News

Sickle Cell Disease Association holds 50th annual national convention virtually

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5 October 2022

RARE News

American Kidney Fund’s Unknown Causes of Kidney Disease Coalition set to advance policies on rare kidney diseases

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26 September 2022

RARE News

The Dash Alliance and RARE Revolution Magazine – levelling up for RARE

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21 September 2022

RARE News

The 2022 Jeans For Genes grant programme is now open and inviting applications

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1 September 2022

RARE News

Sickle Cell Disease Association celebrates National Sickle Cell Awareness Month

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31 August 2022

RARE News

Operationalise: Early Access Programmes Summit Europe 18-20th October 2022

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24 August 2022

RARE News

RARE Rev-inar Episode 001 Early Access Programmes

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24 August 2022

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