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RARE and Under-Funded
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Author: CONTRIBUTOR

Patient voice

Find the power in you

By CONTRIBUTOR
4 September 2024

Charity & advocacy

SMA Europe unites international voices in the new documentary ‘One Community. Shared Dreams’

By CONTRIBUTOR
31 August 2024

Industry Insights

How ‘do’ we versus how ‘should’ we think about disease awareness activities?

By CONTRIBUTOR
30 August 2024

Patient voice

Rare cancers: Sarcoma and your mental health

By CONTRIBUTOR
28 August 2024

Turning the tide for rare disease

Rare Patient Voice: Helping patients and caregivers share their voices

By CONTRIBUTOR
28 August 2024

Patient voice

Finding Joy and Keeping Joy: Morven-May MacCallum’s 17-year battle with Lyme disease

By CONTRIBUTOR
21 August 2024

Patient voice

Looking for the positives during hard times: visual snow syndrome

By CONTRIBUTOR
21 August 2024

A day in the life

#JosiahStrong: Living with familial cold autoinflammatory syndrome—one year on

By CONTRIBUTOR
14 August 2024

Letters

A troubling development in access to treatment for people living with primary biliary cholangitis (PBC)

By CONTRIBUTOR
7 August 2024

Industry Insights

Cell and gene therapies: Where are we now?

By CONTRIBUTOR
31 July 2024

Letters

Sarcoma Awareness Month: Sarcomas demand urgent awareness and education to prevent poor outcomes

By CONTRIBUTOR
24 July 2024

Turning the tide for rare disease

I am Celine Dion: The stiff person syndrome community reacts to the release of Dion’s documentary

By CONTRIBUTOR
22 July 2024

Industry Insights

Early access to medicines: A picture is worth a thousand words

By CONTRIBUTOR
17 July 2024

Charity & advocacy

Bridging gaps in care: How independent charitable patient assistance organisations support underserved populations

By CONTRIBUTOR
10 July 2024

Industry Insights

What can rare disease services learn from oncology services? A personal reflection

By CONTRIBUTOR
1 July 2024

Letters

“Glass siblings”: an unnecessary label

By CONTRIBUTOR
24 June 2024

Turning the tide for rare disease

The UK General Election 2024: Ensuring rare diseases remain a priority

By CONTRIBUTOR
24 June 2024
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