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Author:
CONTRIBUTOR
Reviews
RARE Reels review: Knox Goes Away
By CONTRIBUTOR
30 September 2024
Patient voice
My unending search for a diagnosis?
By CONTRIBUTOR
25 September 2024
Science & tech
Improved patient finding strategies for rare diseases – a win-win for patients and drug developers
By CONTRIBUTOR
25 September 2024
Charity & advocacy
Haemochromatosis UK helps thousands with life-threatening genetic condition to be diagnosed through postal health kits
By CONTRIBUTOR
18 September 2024
A day in the life
Drunk or disabled? – challenges with ataxia
By CONTRIBUTOR
16 September 2024
Sunday sessions
How reiki, spirituality and faith help me accept life with a rare disease
By CONTRIBUTOR
15 September 2024
Letters
The math is anything but encouraging
By CONTRIBUTOR
12 September 2024
Charity & advocacy
Alex TLC Monthly Research Summaries
By CONTRIBUTOR
12 September 2024
Industry Insights
NICE’s key developments in 2024 in summary
By CONTRIBUTOR
11 September 2024
Charity & advocacy
Hope on the horizon: celebrating two years of Hereditary Brain Aneurysm Support and a bright future ahead
By CONTRIBUTOR
10 September 2024
Turning the tide for rare disease
Sickle cell disease: The urgent need for better care, increased research funding and better treatment options
By CONTRIBUTOR
8 September 2024
Patient voice
Find the power in you
By CONTRIBUTOR
4 September 2024
Charity & advocacy
SMA Europe unites international voices in the new documentary ‘One Community. Shared Dreams’
By CONTRIBUTOR
31 August 2024
Industry Insights
How ‘do’ we versus how ‘should’ we think about disease awareness activities?
By CONTRIBUTOR
30 August 2024
Patient voice
Rare cancers: Sarcoma and your mental health
By CONTRIBUTOR
28 August 2024
Turning the tide for rare disease
Rare Patient Voice: Helping patients and caregivers share their voices
By CONTRIBUTOR
28 August 2024
Patient voice
Finding Joy and Keeping Joy: Morven-May MacCallum’s 17-year battle with Lyme disease
By CONTRIBUTOR
21 August 2024
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