RARE News

RARE News

New study reveals severe lack of support for Dravet Syndrome carers

By admin

3 December 2024

RARE News

DEBRA partners with NHS England to better understand epidermolysis bullosa (EB)

By admin

11 November 2024

RARE News

HBA Support achieves registered charity status

By admin

7 November 2024

RARE News

DREAMS: a year of innovation and progress in the quest for neuromuscular disease therapies

By admin

31 October 2024

RARE News

Walk with WAPO through the Experiences of People Living with Acromegaly

By admin

30 October 2024

RARE News

MENA Congress for Rare Diseases 2025

By admin

29 October 2024

RARE News

CureDuchenne partners with Blizzard Entertainment and World of Warcraft for limited-time charity pet program

By admin

29 October 2024

RARE News

PRISMS Creates Awareness for Smith-Magenis Syndrome on Smith-Magenis Syndrome Awareness Day

By admin

28 October 2024

RARE News

Laura MacNeill named new CEO of CMT Research Foundation

By admin

23 October 2024

RARE News

It’s CMT Awareness Month during October, although less than 10% of the UK population have heard of CMT (according to a survey)

By admin

22 October 2024

RARE News

Accessia Health opens financial assistance program For individuals with rare blood disorder myelodysplastic syndromes

By admin

21 October 2024

RARE News

Dravet Syndrome UK awarded major funding boost to accelerate research into Dravet Syndrome

By CONTRIBUTOR

9 October 2024

RARE News

CMT Research Foundation surpasses $10 Million goal of ENDGAME Capital Campaign

By admin

1 October 2024

RARE News

Sickle Cell Disease Association of America Inc. holds convention in Atlanta

By admin

1 October 2024

RARE News

PSPA invites applications for small research projects looking into PSP & CBD

By admin

24 September 2024

RARE News

13th Annual Getzlaf Golf Shootout raises nearly $500,000 for CureDuchenne, welcoming Troy and Danielle Terry as new hosts

By admin

24 September 2024

RARE News

International Gaucher Alliance celebrates 30 years of international patient advocacy

By Becky Pender

23 September 2024

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