Close
×
Subscribe Now
By entering these details you are signing up to receive our newsletter.
First Name
Last Name
Your Email
Type of visitor?
Individuals with a rare condition
Caregiver/family member
Industry/biotech/pharma
Healthcare professionals
Charity/advocate
General interest
Newsletters
RAREBite Newsletter Subscribers (Twice Weekly)
Magazine and RARE Round-Up Weekly Newsletter
Latest Edition
RARE and Under-Funded
Subscribe Now
Home
Meet the team
Magazine
RARE INSIGHTS
A day in the life
Charity & advocacy
Industry insights
Letters
Medical
News
Patient voice
RARE caregiving
RARE ramblings
RARE REV-inar
Reviews
Science & tech
Sunday sessions
Turning the tide for rare disease
THE PEOPLE OF RARE
Digital Spotlight
RARE Reports
Resources
Charity Partners
WORK WITH US
Rare Revolutionaries
Community Gallery
Rare Youth
SHOP
Latest Edition
RARE and Under-Funded
Subscribe Now
To use more accessibility options, please use a different browser such as Chrome or Firefox.
Patient voice
Patient voice
What is pain?
By CONTRIBUTOR
9 October 2024
Patient voice
Understanding palliative care
By CONTRIBUTOR
9 October 2024
Patient voice
My unending search for a diagnosis?
By CONTRIBUTOR
25 September 2024
Patient voice
Find the power in you
By CONTRIBUTOR
4 September 2024
Patient voice
Rare cancers: Sarcoma and your mental health
By CONTRIBUTOR
28 August 2024
Patient voice
Finding Joy and Keeping Joy: Morven-May MacCallum’s 17-year battle with Lyme disease
By CONTRIBUTOR
21 August 2024
Patient voice
Looking for the positives during hard times: visual snow syndrome
By CONTRIBUTOR
21 August 2024
Patient voice
How CLN2 Batten disease changed our life: “A Mother’s Love”
By CONTRIBUTOR
16 May 2024
Patient voice
Raising a child with Hirschsprung’s disease
By CONTRIBUTOR
28 February 2024
Patient voice
Love isn’t rare—Ken To’s journey with Huntington’s disease
By CONTRIBUTOR
11 February 2024
Patient voice
If you want to make God laugh, tell him about your plans
By CONTRIBUTOR
31 January 2024
Patient voice
Fostering a positive mind and body
By CONTRIBUTOR
1 November 2023
Patient voice
Let’s talk about sex, baby!
By CONTRIBUTOR
25 October 2023
Patient voice
Joshua Ruff: a journey of transformation through faith, family and farming
By CONTRIBUTOR
4 October 2023
Patient voice
Living with cold agglutinin disease: Jörg’s story
By CONTRIBUTOR
25 September 2023
Patient voice
The physical, mental, and emotional toll of Charcot-Marie-Tooth disease: Joe Hogan’s story
By CONTRIBUTOR
13 September 2023
Patient voice
Together—every step
By CONTRIBUTOR
31 May 2023
1
2
3
Next »
Skip to content
Open toolbar
Accessibility Tools
Accessibility Tools
Increase Text
Increase Text
Decrease Text
Decrease Text
Grayscale
Grayscale
High Contrast
High Contrast
Negative Contrast
Negative Contrast
Light Background
Light Background
Links Underline
Links Underline
Readable Font
Readable Font
Reset
Reset