Close
×
Subscribe Now
By entering these details you are signing up to receive our newsletter.
First Name
Last Name
Your Email
Type of visitor?
Individuals with a rare condition
Caregiver/family member
Industry/biotech/pharma
Healthcare professionals
Charity/advocate
General interest
Newsletters
RAREBite Newsletter Subscribers (Twice Weekly)
Magazine and RARE Round-Up Weekly Newsletter
Latest Edition
Subscribe Now
Home
Meet the team
Magazine
RARE INSIGHTS
A day in the life
Charity & advocacy
Industry insights
Letters
Medical
News
Patient voice
RARE caregiving
RARE ramblings
RARE REV-inar
Reviews
Science & tech
Sunday sessions
Turning the tide for rare disease
THE PEOPLE OF RARE
Digital Spotlight
RARE Reports
Resources
Charity Partners
WORK WITH US
Rare Revolutionaries
Community Gallery
Rare Youth
SHOP
Latest Edition
Subscribe Now
To use more accessibility options, please use a different browser such as Chrome or Firefox.
RARE News
RARE News
PRISMS Creates Awareness for Smith-Magenis Syndrome on Smith-Magenis Syndrome Awareness Day
By admin
28 October 2024
RARE News
Laura MacNeill named new CEO of CMT Research Foundation
By admin
23 October 2024
A day in the life
A Day in the Life: living with sickle cell anaemia-Naomi’s story
By CONTRIBUTOR
23 October 2024
RARE News
It’s CMT Awareness Month during October, although less than 10% of the UK population have heard of CMT (according to a survey)
By admin
22 October 2024
RARE News
Accessia Health opens financial assistance program For individuals with rare blood disorder myelodysplastic syndromes
By admin
21 October 2024
Turning the tide for rare disease
Bringing light into the world: the father running over 200 miles for Angelman Syndrome
By CONTRIBUTOR
16 October 2024
Charity & advocacy
NF1 breast cancer awareness campaign: Andrea’s story
By ebishop
15 October 2024
Charity & advocacy
NF1 breast cancer awareness campaign: Leading NF1 expert Professor Gareth Evans calls for earlier screening
By Becky Pender
15 October 2024
Charity & advocacy
NF1 breast cancer awareness campaign: Caitriona Plunkett empowers young women with NF1 to prioritise breast health
By Becky Pender
15 October 2024
Charity & advocacy
NF1 breast cancer awareness campaign: Sharon’s story
By ebishop
15 October 2024
Charity & advocacy
NF1 breast cancer awareness campaign: Jodie’s story
By ebishop
15 October 2024
A day in the life
A day in the life of a PSPA helpline manager
By CONTRIBUTOR
14 October 2024
Turning the tide for rare disease
Research into diagnostic tests celebrated at international conference
By CONTRIBUTOR
9 October 2024
RARE News
Dravet Syndrome UK awarded major funding boost to accelerate research into Dravet Syndrome
By CONTRIBUTOR
9 October 2024
Patient voice
Understanding palliative care
By CONTRIBUTOR
9 October 2024
Patient voice
What is pain?
By CONTRIBUTOR
9 October 2024
Charity & advocacy
Join the movement: championing care for rare musculoskeletal conditions
By CONTRIBUTOR
9 October 2024
« Previous
1
2
3
4
…
33
Next »
Skip to content
Open toolbar
Accessibility Tools
Accessibility Tools
Increase Text
Increase Text
Decrease Text
Decrease Text
Grayscale
Grayscale
High Contrast
High Contrast
Negative Contrast
Negative Contrast
Light Background
Light Background
Links Underline
Links Underline
Readable Font
Readable Font
Reset
Reset