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Autumn 2017 RARE Science/Tech

rare disease science

RARE Technology and Science 

RARE Revolution’s Rebecca Stewart introduces the following special sections, which highlight some exciting developments in rare technology, as well as looking at the science around big progress being made in diagnosis and treatment trials and pathways. 

http://bit.ly/RAREScienceandTech 

Robot to the Resuce: 

The Start-Up with a Solution to Social Isolation 

How Norwegian native, Karen Dolva is using technology to fight the effects of isolation. 

http://bit.ly/RobotToRescue 

Doctors, patients & rare diseases 

Dr Amina Al-Yassin on what happens when doctors and patients become equals and the valuable lessons her experiences with the Norrie Disease Foundation have taught her.

http://bit.ly/DoctorToPatient 

Access to Unlicensed Medicines Provide Options for Rare Disease Patients

When the UK launched, Early Access to Medicines Scheme, finally giving hope to rare disease patients whose condition has no currently licensed treatment, Karen Frascello of Caligor lifted the lid on accessing unlicensed medicines. 

http://bit.ly/AccessUnlicensedMedicines 

Rare Revolution (rarerevolutionmagazine.com)

RARE Technology and Science 

RARE Revolution’s Rebecca Stewart introduces the following special sections, which highlight some exciting developments in rare technology, as well as looking at the science around big progress being made in diagnosis and treatment trials and pathways. 

http://bit.ly/RAREScienceandTech 

Robot to the Resuce: 

The Start-Up with a Solution to Social Isolation 

How Norwegian native, Karen Dolva is using technology to fight the effects of isolation. 

http://bit.ly/RobotToRescue 

Doctors, patients & rare diseases 

Dr Amina Al-Yassin on what happens when doctors and patients become equals and the valuable lessons her experiences with the Norrie Disease Foundation have taught her.

http://bit.ly/DoctorToPatient 

Access to Unlicensed Medicines Provide Options for Rare Disease Patients

When the UK launched, Early Access to Medicines Scheme, finally giving hope to rare disease patients whose condition has no currently licensed treatment, Karen Frascello of Caligor lifted the lid on accessing unlicensed medicines. 

http://bit.ly/AccessUnlicensedMedicines 

RARE Technology and Science 

RARE Revolution’s Rebecca Stewart introduces the following special sections, which highlight some exciting developments in rare technology, as well as looking at the science around big progress being made in diagnosis and treatment trials and pathways. 

http://bit.ly/RAREScienceandTech 

Robot to the Resuce: 

The Start-Up with a Solution to Social Isolation 

How Norwegian native, Karen Dolva is using technology to fight the effects of isolation. 

http://bit.ly/RobotToRescue 

Doctors, patients & rare diseases 

Dr Amina Al-Yassin on what happens when doctors and patients become equals and the valuable lessons her experiences with the Norrie Disease Foundation have taught her.

http://bit.ly/DoctorToPatient 

Access to Unlicensed Medicines Provide Options for Rare Disease Patients

When the UK launched, Early Access to Medicines Scheme, finally giving hope to rare disease patients whose condition has no currently licensed treatment, Karen Frascello of Caligor lifted the lid on accessing unlicensed medicines. 

http://bit.ly/AccessUnlicensedMedicines 

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