RARE News

RARE News

BBS UK participates in BBS global day to support individuals affected by Bardet Biedl syndrome

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25 September 2021

RARE News

Niemann-Pick UK are set to launch ‘Invisible Me’ campaign and short film ‘Invisible Manners’

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14 September 2021

RARE News

Michael McGrath – CEO of The Muscle Help Foundation discusses academic research with University of Hertfordshire

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13 August 2021

RARE News

Visual Snow Initiative: the charity on a mission to cure visual snow syndrome

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12 July 2021

RARE News

All change at Genetic Disorders UK

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2 June 2021

RARE News

It’s NOT Parkinson’s. Progressive supranuclear palsy and corticobasal degeneration

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28 May 2021

RARE News

Non-profit partnership with Illumina aims to reduce the diagnostic odyssey for individuals living with a rare epilepsy

By admin

12 April 2021

RARE News

ShieldUs call to action for our learning disabilities community’s right to life

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1 April 2021

RARE News

Research grant of over 2 million Euro offers new hope for children with rare condition Schinzel-Giedion syndrome

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26 January 2021

RARE News

Reforming Rare Diseases: Why Genetic Alliance UK and Alexion are calling for urgent change to improve patient care

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9 December 2020

RARE News

People with rare neurological conditions need a much better deal says new Neurological Alliance report

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25 November 2020

RARE News

FSD call for innovative research projects in advanced therapies for Dravet syndrome

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19 November 2020

RARE News

Illuminating the path to youth employment

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18 November 2020

RARE News

Ground-breaking patient-led AKU study published in the Lancet

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11 October 2020

RARE News

International Ataxia Awareness Day

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24 September 2020

RARE News

The yellow front door, the beach hut & those patch houseplants!

By admin

16 September 2020

RARE News

Bardet-Biedl Syndrome UK (BBS UK) publish booklet supporting children and young people with Bardet-Biedl Syndrome in learning environments, across the UK

By admin

10 September 2020

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