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Turning the tide for rare disease
Turning the tide for rare disease
Turning the tide for adult polyglucosan body disease (APBD)
By admin
16 March 2022
Turning the tide for rare disease
The Global Genes Rare Disease Diversity, Equity and Inclusion Report: the challenges
By admin
16 March 2022
Turning the tide for rare disease
The healing power of storytelling
By admin
14 March 2022
Turning the tide for rare disease
Gillian Jackson: bringing positive energy and information to the online BBS community
By admin
11 March 2022
RARE News
New research released with recommendations for improving psychological support at the point of a rare disease diagnosis
By admin
10 March 2022
Charity & advocacy
The Vascular Birthmarks Foundation, Dr. Giacomo Colletti, Laserplast, and Candela collaborate to provide pro bono laser treatments
By admin
10 March 2022
Turning the tide for rare disease
How 10,000 people living with disability could end the foster care crisis
By admin
7 March 2022
RARE News
Myhre Syndrome Foundation awards $150,000 in grants
By admin
3 March 2022
RARE News
Millions of people with rare diseases to benefit from faster diagnosis and better access to treatment
By admin
2 March 2022
RARE News
THE TAPS SUPPORT FOUNDATION
By admin
28 February 2022
Turning the tide for rare disease
Turning the tide for rare disease
By admin
28 February 2022
Industry Insights
Living with Gaucher disease: challenging encounters along the patient journey
By admin
17 February 2022
RARE News
Teddington Trust and the XP Support Group to join forces to strengthen support for the xeroderma pigmentosum community
By admin
15 February 2022
Patient voice
Cavernomas—a patient’s efforts to understand the possible systemic implications of a defect in the KRIT1 (CCM1) gene
By admin
14 February 2022
Patient voice
The global disability community and the DE&I discussion: a match that needs to be made
By admin
9 February 2022
RARE News
The Neuromuscular Disease Foundation Takes the Lead
By admin
4 February 2022
RARE News
The urgent case for patient assistance funding
By admin
3 February 2022
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