Industry Insights

UK report calls for more government input to make cell and gene therapies a true health system priority

By CONTRIBUTOR

9 January 2024

Charity & advocacy

Davis Out of the Unknown: a family’s life with Koolen-de Vries Syndrome and their search for treatment

By CONTRIBUTOR

3 January 2024

RARE Ramblings

Richard’s RARE Ramblings: Winter is coming… and I am ecstatic!

By CONTRIBUTOR

13 December 2023

Science & tech

The Undiagnosed Diseases Network’s mission to eradicate the diagnostic odyssey: an interview with Sarah Marshall

By CONTRIBUTOR

6 December 2023

A day in the life

A day in the life: a medically complex condition that is as unpredictable as the weather

By CONTRIBUTOR

29 November 2023

Charity & advocacy

Thoughts into Action: What is quality of life as defined by people living with inherited metabolic disorders?

By CONTRIBUTOR

22 November 2023

Charity & advocacy

Shining a light on Smith-Magenis syndrome

By CONTRIBUTOR

15 November 2023

Science & tech

What is a flare in Sjögren’s? TREND Community’s innovative use of artificial intelligence to find answers for the community

By CONTRIBUTOR

8 November 2023

Patient voice

Fostering a positive mind and body

By CONTRIBUTOR

1 November 2023

Patient voice

Let’s talk about sex, baby!

By CONTRIBUTOR

25 October 2023

Charity & advocacy

Do you work for a compassionate employer?

By CONTRIBUTOR

18 October 2023

Reviews

RARE Reads: Keeping Joy

By CONTRIBUTOR

11 October 2023

Industry Insights

Together4RD: making ERN-industry collaboration a key pillar of the future in the rare disease research ecosystem

By CONTRIBUTOR

11 October 2023

A day in the life

A day in the life: navigating our way through the labyrinth of a newly discovered disease

By CONTRIBUTOR

9 October 2023

Reviews

RARE Reads: Hero Kids in the Making

By CONTRIBUTOR

4 October 2023

Patient voice

Joshua Ruff: a journey of transformation through faith, family and farming

By CONTRIBUTOR

4 October 2023

Reviews

RARE Reads: Motherhood: Plot Twist

By CONTRIBUTOR

29 September 2023