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CureDuchenne expands global initiatives andspreads awareness for World Duchenne Day 2024

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23 August 2024

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Ladies Luncheon Newport Beach to debut at Shady Canyon Golf Club on October 15 benefiting CureDuchenne

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20 August 2024

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Introducing the Vascular Voice Network

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12 August 2024

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PSP Association increases support to families

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12 August 2024

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Nod to Naz art exhibit opens in California

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9 August 2024

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Timothy Syndrome Alliance (TSA) looks to recruit Trustee

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2 August 2024

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CMT Research Foundation invests in project at nationwide children’s hospital to develop improved gene therapy delivery systems for several types of CMT

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1 August 2024

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Our Voice, Our Rights, Our Future: The ALLIANCE report and video explores key themes and feedback from its 2024 annual conference

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31 July 2024

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Innov4-ePiK: Innovative diagnostic and therapeutic approaches in potassium channel developmental and epileptic encephalopathies (K-DEEs) using 4P for medicine

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29 July 2024

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cTAP Study indicates Duchenne muscular dystrophy clinical trial enrollment criteria should expand beyond ambulatory status

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29 July 2024

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Landmarks shine pink and purple for National Eosinophilic Week

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29 July 2024

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The CMT Research Foundation’s 2024 Global CMT Research Convention to gather renowned scientific experts and patients to discuss status of treatments and cures for Charcot-Marie-Tooth (CMT) disease

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19 July 2024

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NHL All-Star Ryan Getzlaf returns to the links for the 13th Annual Getzlaf Golf Shootout on September 13-14, benefiting CureDuchenne

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17 July 2024

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Challenges and priorities for the PSP and CBD community: Insights from Mark Jackson

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12 July 2024

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The CMT Research Foundation to launch grant program to support young investigators working on CMT

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12 July 2024

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Concerned stakeholders issue call to action on the implementation of the EU Joint Clinical Assessment for ATMPs

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9 July 2024

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International Neonatal Screening Day: A call for global implementation of neonatal screening programmes

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28 June 2024