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admin
RARE News
Bardet-Biedl Syndrome UK (BBS UK) publish booklet supporting children and young people with Bardet-Biedl Syndrome in learning environments, across the UK
By admin
10 September 2020
RARE News
Leading NIH expert on GNE myopathy joins the Neuromuscular Disease Foundation (NDF)
By admin
1 September 2020
RARE News
Jeff D’Angelo: founder of CHAMP 1 research foundation tells his RARE story
By admin
11 August 2020
Rare insights
Team reflections on working through a global pandemic
By admin
20 July 2020
RARE News
RARE Revolution Magazine and TREND Community are proud to announce their new partnership, working together to power up the voices of the ​youth rare disease community
By admin
24 June 2020
RARE News
Launching RARE Youth Revolution platform
By admin
18 June 2020
RARE News
A global gateway to a lasting legacy
By admin
17 June 2020
RARE News
Genomenon released genomic landscape for ectodermal dysplasias for Rare Disease Week
By admin
5 March 2020
Weblinks and references
Signposting weblinks for: Mental Health special issue 012(S)
By admin
10 April 2019
Weblinks and references
References and signposting weblinks for: RARE Patient Partners edition 014
By admin
10 January 2019
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